References
Cornwall A. and Jewkes R. (1995). What is participatory research? Soc Sci Med, 41(12), 1667-1676
Fadem P., Minkler M., Perry M., Blum K., Moore L., and Rogers J. (2003). Ethical Challenges in Community Based Participatory Research: A Case Study from the San Francisco Bay Area Disability Community. In M. Minkler and N. Wallerstein (Eds.), Community Based Participatory Research for Health (pp. 242-262). San Francisco, CA: Jossey-Bass
Goldstein E., Freedman B., Richards A., and Grinstead O. (2000). Conducting Community- Based Research: The Legacy Project. University of California, San Francisco, Center for AIDS Prevention Studies
Hagey R.S. (1997). The use and abuse of participatory action research. Chronic Dis Can, 18(1), 1-4
Hatch J., Moss N., Saran A., Presley-Cantrell L., and Mallory C. (1993). Community research: partnership in black communities. Am J Prev Med, 9(6 Suppl), 27-31; discussion 32-24
Israel B.A., Schulz A.J., Parker E.A., and Becker A.B. (1998). Review of community-based research: assessing partnership approaches to improve public health. Annu Rev Public Health, 19, 173-202
Lantz P.M., Viruell-Fuentes E., Israel B.A., Softley D., and Guzman R. (2001). Can communities and academia work together on public health research? Evaluation results from a community-based participatory research partnership in Detroit. J Urban Health, 78(3), 495-507
Marincowitz G.J. (2003). How to use participatory action research in primary care. Fam Pract, 20(5), 595-600
Maselli D., Lys J.-A., and Schmid J. (2004). Improving Impacts of Research Partnerships. Berne: Swiss Commission for Research Partnerships with Developing Countries KFPE
Acknowledgments
The authors of this study would like to thank the respondents who agreed to participate in the study and who took time from their busy schedules to consider their past experiences as a CBCRP CRC recipient. Thank you for your willingness to participate.
Additionally, we would like to thank the following people for their contributions to this study:
Walter Price, Dr.P.H.
CBCRP Community Initiatives Manager
Jelena Simjanovic
CBCRP Program Assistant
Judy MacLean
Consultant, editor
Sally Goldin, Tell Me A Story
Transcriber
Appendix A
CBCRP CRC Projects Study Results
A Support Group Alternative for Rural
and Isolated Women Breast Cancer Risk Factors: Lesbian
and Heterosexual Women
Breast Health Project for Hmong
Women and Men
Do Community Cancer Support Groups
Reduce Physiologic Stress?
|
Increasing Breast Health Access for
Women with Disabilities Marin County Breast Cancer Study of
Adolescent Risk Factors
Samoans and Breast Cancer:
Evaluation of a Theory-based Program |
Appendix B
Peer Reviewed Articles and Abstracts that Resulted
from CRC Grants in this Evaluation
Articles
2. Benz C.C., Clarke C.A., and Moore D.H. (2003). Geographic Excess of Estrogen Receptor-Positive Breast Cancer, Cancer Epidemiology Biomarkers and Prevention, 12, 1523-1527 3. Collie K., Wong P., Tilston J., Butler D., Turner-Cobb J., Kreshka M.A., Parsons R., Graddy K., Cheasty J.D., and Koopman C. (2005). Self-Efficacy, Coping and Difficulties Interacting with Health Care Professionals Among Women Living with Breast Cancer in Rural Communities, Psycho Oncology, 14, 901-912 4. Cordova M.J., Giese-Davis J., Golant M., Kronenwetter C., Chang V., McFarlin S., Spiegel D. (2003). Mood Disturbance in Community Cancer Support Groups: The Role of Emotional Suppression and Fighting Spirit, Journal of Psychosomatic Research, 55, 461–467 5. Dibble S.L., Roberts S.A., Davids H.R., Paul S.M. and Scanlon J.L .(Oct. 6, 1999). A Comparison of Breast Cancer Risk Factor Distributions between Lesbian and Bisexual Women. MS JAMA Online 282(13) 6. Dibble S., Roberts S.A., Robertson P.A., Paul S.M. (2002). Risk Factors for Ovarian Cancer: Lesbian and Heterosexual Women. Oncology Nursing Forum Online Journal, 29(1) 7. Dibble S., Roberts S.A., Nussey B. (2004). Comparing Breast Cancer Risk Between Lesbians and Their Heterosexual Sisters. Women’s Health Issues 14, 60-68 8. Hwang E.S., Shiboski C.T., Farren G., Benz C.C., and Wrensch M. (2005). Risk Factors for Estrogen Receptor- Positive Breast Cancer. Archives of Surgery, 140(1), 58-62 9. Kagawa-Singer M., Foo M.A., Tanjasiri S.P. et al (Spring 2001). Breast Cancer Screening: Hmong Women in California. Breast Cancer Early Detection Program, Los Angeles Journal of Cancer Education 6 (1):50-4 10. Koopman C., Angell K., Turner-Cobb J., Kreshka, M.A., Donnelly P., McCoy R., Turkseven A., Graddy K., Giese-Davis J., and Spiegel D. (2001). Distress, Coping, and Social Support Among Rural Women Recently Diagnosed with Primary Breast Cancer. The Breast Journal 7(1), 1-9 |
11. Mishra S.I., Bastani R., Huang D., Luce P.H., and Baquet C.R. (2007) Mammography Screening and Pacific Islanders: Role of Cultural and Psychosocial Factors. Journal of Cancer Education, accepted for publication. 12. Nguyen T.N., Kagawa-Singer M., Tanjasiri S., and Foo M. (2003). Vietnamese American Women’s Health: A Community Perspective. Amerasia Journal 29, 1183-198 13. Owen J.E., Giese-Davis J., Cordova M., Kronenwetter C., Golant M., and Spiegel D. (Aug 2006). Self-Report and Linguistic Indicators of Emotional Expression in Narratives as Predictors of Adjustment to Cancer. Journal of Behavioral Medicine, 29(4):335-45 14. Palesh O., Shaffer T., Larson J., Edsall S., Chen X.H., Koopman C., Turner-Cobb J., Kreshka M.A., Graddy K., and Parsons R. (2006). Emotional Self-Efficacy, Social Support, and Stressful Life Events in Relation to Mood Disturbance among Women Living With Breast Cancer in Rural Communities. The Breast Journal, 12(2), 123-129 15. Roberts S.A., Dibble S., Nussey B., Casey K. (2003). Cardiovascular Disease Risks in Lesbians. Women’s Health Issues 13, 167-174 16. Roberts S.A., Dibble S.L., Scanlon J.L., Paul S.M. and Davids H.R. (1998). Differences in Risk Factors for Breast Cancer: Lesbian and Heterosexual Women. Journal of the Gay and Lesbian Medical Association, 2(3), 93-101 17. Tanjasiri S.P., Kagawa-Singer M., Nguyen T.-Y., Foo M.A. (2004). Collaborative Research as an Essential Component for Addressing Cancer Disparities among Southeast Asian and Pacific Islander Women. Ethnic Disparities 14(3) Suppl. S14-9 18. Wrensch M., Chew T. Farren G., Barlow J., Belli F., Clarke C., Erdmann C.A., Lee M., Moghadassi M., Peskin-Mentzer R., Quesenberry C.P. Jr., Souders- Mason V., Spence L., Suzuki M., and Gould M. (2003). Risk Factors for Breast Cancer in a Population with High Incidence Rates. Breast Cancer Research 5(4):R, 88-102 Abstracts |
Appendix C
Products and Materials from CRC Grants
in this Evaluation
1. Brochures (in English & Hmong) “Life is Precious” and “Lub Neej Yog Ib Yam Zoo Tshaj Plaws” developed by Mari Nakamura. 2. Video (in Hmong with English subtitles) “Lub Neej Yog Ib Yam Zoo Tshaj Plaws: Kev Kuaj Mis Khees Xaws (Life is Precious: Breast Cancer Screening for Hmong Women) developed by Rod Lew. 3. “One in Eight: Women Speaking to Women. A Breast Cancer Workbook Journal” developed by Mary Ann Kreshka and illustrated and designed by Kathy Graddy. |
4. Memory Tools: Memory Board with Life Events Calendar, Visualization script with audio relaxation CD, and photo montage by Mary Gould, Georgie Farren, Flavia Belli, Roni Mentzer, Linda Spence and Margaret Wrench. 5. “Breast Health and Beyond for Women with Disabilities: A Provider’s Guide to the Examination and Screening of Women with Disabilities” edited by Florita Maiki, Nancy Freed, et al. |

